Maycie, "The Superstar"...

Can I just tell you what a silly little girl Jake and I are growing? Goodness...she not only makes us laugh, but she has our doctors and our ultrasound tech laughing too. She is a feisty little thing, that's for sure. Today she had both of her hands placed strategically on her face, fingers-spread, and refused to move them. Little stink. She was even kicking so hard during the ultrasound, my whole stomach would jump. She made it very clear today [and every other appointment] how much she really truly does not like to be disturbed with a camera and spectators every few weeks. 

Today's early appointment didn't quite give us the answers we wanted but it did help us to know we will [hopefully] get them soon. Dr. Draper's office is organizing quite the shindig for us come October 30th. We will spend the entire day in between the University of Utah Medical Center and Primary Children's Medical Center. All in all, I think we have five or six appointments scheduled for the day. I can't help but think one of these appointments ought to give us some pretty good insight into Maycie's possible future.    

We will begin the day with yet another ultrasound at the Maternal Fetal Diagnostic Center at UUMC. We will then meet Maycie's Pediatric Surgeon at PCMC followed by a consult with the Craniofacial clinic. Maycie is also scheduled to receive a fetal echocardiogram to check on her little heart [which, by the way, looks healthy so far! Go Maycie!]. And then we will finish the day with Dr. Draper. Whew. What a day. 

Today Dr. D ordered what is called a "microarray" test on my remaining cells from the amniocentesis. Basically, they will look really closely at Maycie's Chromosome 3 abnormality and see what DNA is involved. Hopefully this will give us more insight into what kind of chromosome issues little Maycie will have. 

Dr. D also informed us Maycie will soon be a little superstar. Apparently a bunch of doctors get together twice a month for a big conference about certain patients at the UUMC. Dr. D asked if little Maycie could be the center of attention at their next conference. This is great because quite a few doctors can get together at once and discuss our little girl. But...it scares me all the same. I can't help but think if Maycie's several conditions were seen together often, she wouldn't need her own conference. I guess I need to consider only the good in the situation; Maycie will have several doctors at once discussing her medical chart. I should call it a blessing instead of a warning sign. 

We have a few other doctors appointments here in Pocatello before October 30th, but I am seriously counting down the days until the big one. Because, basically, I am sick of saying "I don't know" to our family and friends when they ask questions.